Kaylah's story

My name is Kaylah, I am 23 and live in Tasmania. One unique thing about me is that I love to do craft, which involves me sewing and crocheting, etc.

I have been caring for my mother for 2 years. I care for both my mother and brother in my life. My brother suffered with epilepsy, while my mum has mobility issues, chronic emphysema (Full time on oxygen) and she is just coming out of a six months stay in hospital. I have to care for my mother and brother because well I just took on the role. All my other siblings live further way with their families and I don’t have children. I don’t think I should expect them to help major in some ways.

My responsibilities include helping with toileting and bathing. However, I also have to study part time, whilst also preparing to return maybe to work a couple of days a week. Depending on how my mum’s health improves. Just like me I’d imagine other young carers would also have to look after themselves with their physical and mental health.

Being away from my mum makes me feel that I have a sense of peace wash over me knowing that I’m not far but there is someone there if mum needs help but also it is my time to have a breather. However, there is some guilt knowing that someone else might not do things properly, maybe give her the wrong medication or assist her to the toilet if it’s required and she tries herself and has a fall.

Being a carer has changed my life because I have developed a understanding of how precious life is, how much family means to me. Because of my caring role I am unable to attend work as a early childhood educator. But I have high hopes that mum's health will improve and I’ll be able to go back to work maybe 2-3 days a week. Being a carer has not only taught me to be patient and to look after myself but to also take note of those around me on how they feel and also that there is places that will help us if we are in need.

I would cope better with my caring role if I had more access to seeing someone about my mental health as my therapist costs me money out of my pocket and also having my trustworthy doctor in understanding my mothers health.

I would like others to realize that to not take life for granted and communicate to those around them; ask if they are well; if they need help in some way. My piece of advice to my fellow young carers is to look after themselves. Don’t burn yourselves out. You're no good to anyone if you are not well mentally and physically.