But you may worry they won't listen.

‘They didn’t get I helped mum. I had to speak up a few times before they would listen. They seemed surprised when I knew the names of her medications.’

Start by talking in a calm way.

‘Try to calm your emotions. Often half the battle is showing that you’re a mature person. Find a way to educate the doctors and nurses that doesn’t get you angry or annoyed.’

And practice conversations.

‘I’m less emotional with doctors and nurses if I practice talking to them. It’s now much easier to tell them how it’s important to include me conversations about my uncle.’

But don't be afraid to stand up for yourself.

‘I’ve learned to be confident in what I have to say. I told the doctor “Look. I’m her carer. I live with her at home and this isn’t working”.’

Find someone to help if needed.

‘Can you find someone to help you talk to the doctors? That could be hard if it’s an emergency. Try to find someone to go with you if you know there’s an appointment coming up.’

Was this helpful?*
Feedback:*

Need extra support?
Contact the Carer Gateway

Carer Gateway aims to make your life easier.

By calling Carer Gateway on 1300 422 737, you will be connected with a new Australia-wide network of Carer Gateway service providers. They will talk through what you need and help you to find local services and support to help you.