The Mackay brothers

My name is Dylan, I am 14 and I have 2 younger brothers. Both boys have been diagnosed each with a rare genetic condition. One has congenital myasthenia syndrome, my youngest brother has Muckle Wells syndrome.

Both boys need help and I am grateful for being the big brother they need. Wether it’s helping to carry them, helping mum lift the electric wheelchair in and out of the car, helping mum and dad giving daily injections and learning myself how to do it, hugging them if they feel sad or feel unwell., shielding them from COVID even though it meant isolating as a family, we are a team and together we have to be strong. Really grateful for the young carers network as I know I’m not alone in this and I was able to do some things for myself.

Other stories

One punch

My name is Nirvana, and I live in a family of 6. I’m about to turn 16 and I have been a young carer since my mum and dad first got together, which is about 8 years now. <br><br> My dad’s brother has brain damage. Somebody punched him in the back of the head. This […]
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We love music

My name is Billie and I live in Victoria with my brother and my mother. I am a university student, and my brother is 9 and at primary school. We spend a lot of time together, as I take him to school and pick him up most days outside of my university hours, and I […]
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Amelia ’s Story

My name is Amelia, I am 22 and live in Victoria. One unique thing about me is that I love all different kinds of music! I have been caring for my mother for 10 years. My Mother requires care because she is diagnosed with bi-polar mood disorder. I have to care for my mum because […]
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