The Mackay brothers

My name is Dylan, I am 14 and I have 2 younger brothers. Both boys have been diagnosed each with a rare genetic condition. One has congenital myasthenia syndrome, my youngest brother has Muckle Wells syndrome.

Both boys need help and I am grateful for being the big brother they need. Wether it’s helping to carry them, helping mum lift the electric wheelchair in and out of the car, helping mum and dad giving daily injections and learning myself how to do it, hugging them if they feel sad or feel unwell., shielding them from COVID even though it meant isolating as a family, we are a team and together we have to be strong. Really grateful for the young carers network as I know I’m not alone in this and I was able to do some things for myself.

Other stories

My journey so far

Hi, I’m a 14-year-old boy from Tasmania and I’m here to tell you my story. My journey started back when I was around 4 years old when my dad was diagnosed with lung cancer. The following months were hard for my family, finding the cash to pay for his treatment while trying to afford to […]
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One punch

My name is Nirvana, and I live in a family of 6. I’m about to turn 16 and I have been a young carer since my mum and dad first got together, which is about 8 years now. <br><br> My dad’s brother has brain damage. Somebody punched him in the back of the head. This […]
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Joyce’s story

Hi, my name is Joyce and I care for my mum who had brain cancer. I have been a young carer for 5 years . I provide care for my mum, and my siblings. A typical day for me would be cleaning the house, do washing, do the dishes etc. Depending on what the weather  […]
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