The Mackay brothers

My name is Dylan, I am 14 and I have 2 younger brothers. Both boys have been diagnosed each with a rare genetic condition. One has congenital myasthenia syndrome, my youngest brother has Muckle Wells syndrome.

Both boys need help and I am grateful for being the big brother they need. Wether it’s helping to carry them, helping mum lift the electric wheelchair in and out of the car, helping mum and dad giving daily injections and learning myself how to do it, hugging them if they feel sad or feel unwell., shielding them from COVID even though it meant isolating as a family, we are a team and together we have to be strong. Really grateful for the young carers network as I know I’m not alone in this and I was able to do some things for myself.

Other stories

Amelia ’s Story

My name is Amelia, I am 22 and live in Victoria. One unique thing about me is that I love all different kinds of music! I have been caring for my mother for 10 years. My Mother requires care because she is diagnosed with bi-polar mood disorder. I have to care for my mum because […]
Read full story

Look after you

My name is Miguel, I am 16 and live in the Australian Capital Territory.  I have been caring for my mother for 4 years. My mum has no spleen meaning that she basically has no immune system leading to more problems leaving her always in pain. My piece of advice to my fellow young carers […]
Read full story

I didn’t know I was a young carer

I’m Tom, I’m 22 and I’m from Newcastle, NSW. Originally I was a carer for my nan, who lived with us. Mum was a single parent, so she worked full time. Then unfortunately, when Nan passed away my mum couldn’t cope with it. She essentially had a nervous breakdown. I had to step in and […]
Read full story