The Mackay brothers

My name is Dylan, I am 14 and I have 2 younger brothers. Both boys have been diagnosed each with a rare genetic condition. One has congenital myasthenia syndrome, my youngest brother has Muckle Wells syndrome.

Both boys need help and I am grateful for being the big brother they need. Wether it’s helping to carry them, helping mum lift the electric wheelchair in and out of the car, helping mum and dad giving daily injections and learning myself how to do it, hugging them if they feel sad or feel unwell., shielding them from COVID even though it meant isolating as a family, we are a team and together we have to be strong. Really grateful for the young carers network as I know I’m not alone in this and I was able to do some things for myself.

Other stories

My journey so far

Hi, I’m a 14-year-old boy from Tasmania and I’m here to tell you my story. My journey started back when I was around 4 years old when my dad was diagnosed with lung cancer. The following months were hard for my family, finding the cash to pay for his treatment while trying to afford to […]
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Leaving home

At the age of twenty three I was so tired, and wondered how long I could keep caring. My brother had his heart transplant, and I went interstate to help for the duration of his hospital stay. When we got home, I went travelling for a month. While travelling I tried not to think about […]
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Unbroken

Hey there! My name is Jess, I am based in NSW, I’m 15 and I have been a young carer for all my life 🙂 I have a strong passion for music and love playing the guitar. I also love gaming. My Mum was a few months pregnant with me when my Dad had the […]
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